DIAGNOSIS
- What type of leukemia do I have?
- Can you explain my pathology report (laboratory test results) to me?
- Will more tests be needed to confirm the diagnosis?
- What are the results of the analysis of the spinal fluid? What does this mean?
- What are the results of the bone marrow aspiration? What does this mean?
- What are the results of the cytogenetic studies done? What does this mean?
TREATMENT
- What are the treatment options? What is the goal of each treatment?
- What treatment plan do you recommend? Why?
- What clinical trials are open to me? Where are they located, and how do I find out more about them?
- Who will be coordinating my overall treatment?
- What are the possible side effects of this treatment, both in the short term and the long term?
- How long will treatment last?
- How likely is it that my ALL will go into remission?
- What can I do to protect myself from infection during and after treatment?
- When should I call the doctor or hospital if there is a problem while at home?
- How will this treatment affect my daily life? Will I be able to attend school, work and/or perform my usual activities?
- Could this treatment affect my ability to become pregnant or have children in the future? If so, should I talk with a fertility specialist before treatment begins?
- If I’m worried about managing the costs related to my cancer treatment, who can help me with these concerns?
FOLLOW-UP CARE
- What follow-up tests will I need, and how often?
- What is the chance that the ALL will come back? Are there any signs or symptoms I should watch out for?
- Are there blood tests or check-ups that can be done closer to home?
- What long-term side effects or late effects are possible based on the treatment I received?
- How do I get a treatment summary and survivorship care plan to keep in my personal records?
- What survivorship support services are available to me? To my family?
- Whom should I call for questions or problems?
Credit: Mostly collated from Cancer.net.