Questions: Acute Lymphoblastic Leukemia

DIAGNOSIS

  • What type of leukemia do I have?
  • Can you explain my pathology report (laboratory test results) to me?
  • Will more tests be needed to confirm the diagnosis?
  • What are the results of the analysis of the spinal fluid? What does this mean?
  • What are the results of the bone marrow aspiration? What does this mean?
  • What are the results of the cytogenetic studies done? What does this mean?

TREATMENT

  • What are the treatment options? What is the goal of each treatment?
  • What treatment plan do you recommend? Why?
  • What clinical trials are open to me? Where are they located, and how do I find out more about them?
  • Who will be coordinating my overall treatment?
  • What are the possible side effects of this treatment, both in the short term and the long term?
  • How long will treatment last?
  • How likely is it that my ALL will go into remission?
  • What can I do to protect myself from infection during and after treatment?
  • When should I call the doctor or hospital if there is a problem while at home?
  • How will this treatment affect my daily life? Will I be able to attend school, work and/or perform my usual activities?
  • Could this treatment affect my ability to become pregnant or have children in the future? If so, should I talk with a fertility specialist before treatment begins?
  • If I’m worried about managing the costs related to my cancer treatment, who can help me with these concerns?

FOLLOW-UP CARE

  • What follow-up tests will I need, and how often?
  • What is the chance that the ALL will come back? Are there any signs or symptoms I should watch out for?
  • Are there blood tests or check-ups that can be done closer to home?
  • What long-term side effects or late effects are possible based on the treatment I received?
  • How do I get a treatment summary and survivorship care plan to keep in my personal records?
  • What survivorship support services are available to me? To my family?
  • Whom should I call for questions or problems?

Credit: Mostly collated from Cancer.net.