Questions: Acute Myeloid Leukemia

DIAGNOSIS

  • What is my diagnosis? What does it mean? What subtype of AML do I have?
  • Can you explain my pathology report (laboratory test results) to me?
  • Do I need to start treatment right away?
  • Should I get a second opinion?
  • What are the risks and prognosis for this leukemia?

TREATMENT

  • What are my options for treatment? Where is the best place to receive it?
  • What treatment plan do you recommend? Why?
  • What is the goal of each treatment? Is it to eliminate the leukemia, manage the symptoms or side effects, or both?
  • What clinical trials are available for me? Where are they located, and how do I find out more about them?
  • How likely is it that my AML will go into remission?
  • Who will be leading my overall treatment?
  • What are the possible side effects of this treatment, both in the short term and the long term?
  • Could this treatment affect my sex life? If so, how and for how long?
  • Could this treatment affect my ability to become pregnant or have children? If so, should I talk with a fertility specialist before treatment begins?
  • How will the treatment affect my daily life? Will I be able to work, exercise, and perform my usual activities?
  • If I’m worried about managing the costs of treatment, who can help me?
  • What support services are available to me? To my family?
  • Whom should I call for questions or problems?
  • Is there anything else I should be asking?

FOLLOW-UP CARE

  • What is the chance that the AML will come back? Should I watch for specific signs or symptoms?
  • What long-term side effects or late effects are possible based on the treatment I received?
  • What follow-up tests will I need, and how often will I need them?
  • How do I get a treatment summary and survivorship care plan to keep in my personal records?
  • Who will be leading my follow-up care?
  • What survivorship support services are available to me? To my family?

Credit: Mostly collated from Cancer.net.