DIAGNOSIS

• What is my diagnosis?
• Can you explain my pathology report (laboratory test results) to me?
• What stage or risk group is the CLL? What does this mean?
• Should I get a second opinion before starting treatment?

TREATMENT

• Who will be coordinating my overall treatment?
• What are my options for treatment? What is the goal of each treatment?
• What treatment plan do you recommend? Why?
• How often do you treat people with CLL?
• Where is the best place for me to be treated? Will I need to stay in the hospital for treatment?
• What clinical trials are open to me? Where are they located, and how do I find out more about them?
• If a clinical trial is recommended, can I receive treatment nearby or will I need to travel to the treatment center?
• Do I need to start treatment right away? If not, please explain why.
• What are the possible side effects of this treatment, both in the short term and long term?
• How will this treatment affect my daily life? Will I be able to work, exercise, and perform my usual activities?
• Could this treatment affect my sex life? If so, how and for how long?
• Could this treatment affect my ability to become pregnant or have children? If so, should I talk with a fertility specialist before cancer treatment begins?
• If I’m worried about managing the costs related to the treatment, who can help me with these concerns?
• What support services are available to me? To my family?
• Whom should I call for questions or problems?

FOLLOW-UP CARE

• What is the risk of the CLL returning? Are there signs and symptoms I should watch for?
• What long-term side effects or late effects are possible based on the treatment I received?
• What follow-up tests will I need, and how often will I need them?
• How do I get a treatment summary and survivorship care plan to keep in my personal records?
  
• Who will be coordinating my follow-up care?
• What survivorship support services are available to me? To my family?

Credit: Mostly collated from Cancer.net.