DIAGNOSIS

• What is my diagnosis? What phase is the CML in?
• Can you explain my pathology report (laboratory test results) to me?
• Should I get a second opinion?
• Do I need to start treatment right away?

TREATMENT

• What are my options for treatment? What treatment plan do you recommend? Why?
• What are the pros and cons of each option?
• What is the goal of each treatment? To eliminate the leukemia, help me feel better or both?
• What clinical trials are open to me? Where are they located, and how do I find out more about them?
• Who will be coordinating my overall treatment?
• What is my chance of remission and long-term benefit, including cure?
• What are the possible side effects of this treatment, both in the short term and long term?
• If I experience too many side effects, can I switch to a different treatment?
• How will the results of my treatment be monitored?
• How will this treatment affect my daily life? Will I be able to work, exercise, and perform my usual activities?
• Could this treatment affect my sex life? If so, how and for how long?
• If I am worried about managing the costs related to my medical care, who can help me with these concerns?
• What support services are available to me? To my family?
• Whom should I call for questions or problems?
• Is there anything else I should be asking?

REGARDING TARGETED THERAPY

• What type of treatment is recommended? What’s the goal here?
• How long will it take to give this treatment?
• What side effects can I expect during treatment? And the possible long-term effects?
• What can be done to relieve the side effects?
• Will the medicine for CML interfere with any of my other medications?
• Can I stop TKI treatment to start a family? What if my partner and I conceive while I am taking a TKI?
• What are the risks of trying to conceive a child while taking a TKI?

CHEMOTHERAPY AND/OR STEM CELL TRANSPLANT

• What type of treatment is recommended? Its goal?
• How long will it take to give this treatment?
• What side effects can I expect during treatment? Any long-term effects?
• What can be done to relieve the side effects?
• Could this treatment affect my ability to become pregnant or have children? If so, should I talk with a fertility specialist before cancer treatment begins?
• Will the medicine for CML interfere with any of my other medications?
• Am I a candidate for an ALLO stem cell transplantation? When should it be considered?

FOLLOW-UP CARE

• What is the risk of the CML returning or worsening? Are there signs and symptoms I should watch for?
• What long-term side effects or late effects are possible based on the treatment I received?
• What follow-up tests will I need, and how often will I need them?
• How do I get a treatment summary and survivorship care plan to keep in my personal records?
• Who will be coordinating my follow-up care?
• What survivorship support services are available to me? To my family?

Credit: Mostly collated from Cancer.net.