Questions: Hodgkin’s Disease/Lymphoma

DIAGNOSIS

  • What type of Hodgkin lymphoma do I have?
  • Can you explain my pathology report (laboratory test results) to me?
  • Has my biopsy been reviewed by a pathologist who is an expert in lymphoma?
  • Should I get a second opinion?
  • What is the stage of my Hodgkin lymphoma? What is the subtype?
  • What good and poor prognostic factors do I have? What does this mean?

TREATMENT

  • How experienced are you in treating Hodgkin lymphoma?
  • What are my treatment options? Which treatments do you recommend? Why?
  • What are the possible side effects of treatment, both in the short term and the long term?
  • What clinical trials are open to me? Where are they located, and how do I find out more about them?
  • What is the goal of each treatment? Is it to eliminate the cancer, help me feel better, or both?
  • Who will be coordinating my overall treatment?
  • What symptoms should I be most concerned about during treatment? When and how should I contact you if they appear or get worse?
  • How will this treatment affect my daily life? Will I be able to work, exercise, and perform my usual activities?
  • Could this treatment affect my sex life? If so, how and for how long?
  • How can I stay as healthy as possible during treatment? Will taking supplements or changing my diet help improve my overall health?
  • Could this treatment affect my ability to become pregnant or have children? If so, should I talk with a fertility specialist before cancer treatment begins? If I’m a man, should I bank my sperm?
  • If I’m worried about managing the costs related to my cancer care, who can help me with these concerns?
  • Whom should I call for questions or problems?
  • Is there anything else I should be asking?

FOLLOW-UP CARE

  • What is the risk of the cancer returning? Are there signs and symptoms I should watch for?
  • What long-term side effects or late effects are possible based on the cancer treatment I received?
  • What follow-up tests will I need, and how often will I need them?
  • What support services are available to me? To my family?
  • How do I get a treatment summary and survivorship care plan to keep in my personal records?
  • Who will be coordinating my follow-up care?
  • What survivorship support services are available to me? To my family?

Credit: Mostly collated from Cancer.net.