Questions: Non-Hodgkin’s Lymphoma

DIAGNOSIS

  • What caused this? Which type and subtype of lymphoma do I have?
  • Did a pathologist experienced in the diagnosis of lymphoma review the biopsy?
  • Can you explain my pathology report (laboratory test results) to me?
  • Should I get a second opinion? Will this include a specialized pathologist reviewing the biopsy?
  • How many patients do you see with this type of lymphoma each year?
  • Which stage am I? What does this mean?
  • Where in my body has the disease spread?

TREATMENT

  • What are my treatment options?
  • Will I need surgery, chemotherapy, and/or radiation therapy?
  • What is immunotherapy? Is this treatment appropriate for me?
  • What clinical trials are open to me? Where are they located, and how do I find out more about them?
  • Why is it sometimes appropriate to “watch and wait?” Is this an option for me?
  • What treatment plan do you recommend?
  • What is the goal of each treatment? Is it to eliminate the cancer, help me feel better, or both?
  • Is my lymphoma curable? If so, what are the chances of a cure? If not, can the disease be controlled?
  • Who will be coordinating my overall treatment and follow-up care?
  • What are the possible side effects of this treatment, both in the short term and the long term?
  • How will this treatment affect my daily life? Will I be able to work, exercise, and perform my usual activities?
  • Could this treatment affect my sex life? If so, how and for how long?
  • Could this treatment affect my ability to become pregnant or have children? If so, should I talk with a fertility specialist before cancer treatment begins?
  • If I’m worried about the costs of my cancer treatment, who can help me with these concerns?

FOLLOW-UP CARE

  • How can I stay as healthy as possible during and after treatment?
  • What follow-up tests will I need, and how often will I need them?
  • What support services are available to me? To my family?
  • Whom should I call for questions or problems?

Credit: Mostly collated from Cancer.net.